Patient Perspectives

28 February 2022

Patient Perspectives: Kay Parkinson, Founder and Company Secretary, Rare Disease Nurse Network

1 February 2022

Patient Perspectives: Peter Coleman, Independent Researcher and Full-time Carer

7 December 2021

Patient Perspectives – Daisy Ireland, Charcot-Marie Tooth Patient

9 November 2021

Patient Perspectives: Caroline Presho – Director of BRCA Umbrella

11 October 2021

Patient Perspectives: Sarah Winckless – Leadership and Performance Coach and Olympic Bronze Medallist

14 September 2021

Patient Perspectives: David Edward Rose – Ultra-Rare Disease Patient Speaker

Patient Perspectives: Vaila Morrison – Architect, Mother and Rare Disease Advocate (KAT6A syndrome)

Patient Perspectives: Dominique Goodson – Sickle Cell Warrior and President of the SCDForum

Patient Perspectives: Maddie Stoodley – Gaucher’s Association Ambassador and UK Board Member

Patient Perspectives: Jared Griffin – Founder and CEO, Annabelle’s Challenge