Patient Advocacy

28 February 2022

Patient Perspectives: Kay Parkinson, Founder and Company Secretary, Rare Disease Nurse Network

14 September 2021

Patient Perspectives: David Edward Rose – Ultra-Rare Disease Patient Speaker

Patient Perspectives: Dominique Goodson – Sickle Cell Warrior and President of the SCDForum

Genetics Unzipped: Involving Patients in Research

Interview with Arti Patel, Information Officer, Unique

28 February 2020

Interview with Shelley Simmonds, Patient Advocate for rare diseases

30 January 2020

FoG 2020 Presentation Arti Patel & Francesca Wicks, Unique