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Opinion: We should address genetic data governance as we fight to find a COVID-19 vaccine

As the world rushes to develop a vaccine against COVID-19, geneticists are looking at our genes to understand the variation […]

A Spotlight On: Ethics, Biosecurity and Genomic Data – James Giordano, Pellegrino Centre for Clinical Bioethics at Georgetown University Medical Centre

James Giordano is Professor of Neurology and Biochemistry and Senior Scholar in Residence of the Pellegrino Centre for Clinical Bioethics […]

A Spotlight On: Data Sharing – Mahsa Shabani

Mahsa Shabani is an Assistant Professor in Privacy Law at the Faculty of Law and Criminology, Ghent University in Belgium. […]

FAIR data applied to AI & machine learning

The FAIR principles should be applied to both human- and machine-driven activities. Humans have an understanding of the meaning of […]

Considerations for starting a FAIR data library

The FAIR principles have been defined to enable data producers and publishers to make their data findable, accessible, interoperable and […]

Indigenous Genomic Data Needed for Equitable Expanded Carrier Screening:

Pre-conception Expanded Carrier Screening is a technology that uses whole genome sequencing to screen prospective parents as potential carriers of […]

Data sharing at risk due to lack of public trust

The largest ever survey looking at global public perceptions of genomic data sharing suggests that more work is needed to […]

How much is your genetic data worth?

Recently, we have been posting about the changes in user perceptions on the way genetic data is owned, handled, and […]

World of Genomics: Chile

Chile is a country best known for its vibrant culture, stunning landscapes, and rich biodiversity. In this week’s World of […]

AI in the UK – Key Insights 

The use of AI in both research and clinical prediction models is becoming ubiquitous, but there are still several challenges […]