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Down the Rabbit Hole: Space research and Project Maleth – Joseph Borg, Associate Professor, University of Malta

Joseph Borg is an Associate Professor at the University of Malta and the Project Lead of the Maleth Program and […]

Patient Perspectives: Kay Parkinson, Founder and Company Secretary, Rare Disease Nurse Network

Although Kay Parkinson is officially retired, she volunteers at the Rare Disease Nurse Network where she is the Founder and […]

Patient Perspectives – Daisy Ireland, Charcot-Marie Tooth Patient

Daisy Ireland is a Content and Event Producer at Front Line Genomics. Ireland not only has a background in Molecular […]

Why does ESG matter in Genomics?

We all like to play our part in helping the environment. Whether this be donating a couple of pounds to […]

Genome Giants: Kay Davies – Human Geneticist and Professor of Genetics, University of Oxford

Dame Kay Davies is a human geneticist and Professor of Genetics at the University of Oxford. Davies has spent her […]

Patient Perspectives: David Edward Rose – Ultra-Rare Disease Patient Speaker

David Edward Rose works for a rare disease magazine called Rare Revolution Magazine. He is also an ultra-rare disease patient […]

Patient Perspectives: Jared Griffin – Founder and CEO, Annabelle’s Challenge

Jared Griffin is the Founder and CEO of Anabelle’s Challenge, the UK’s leading charity for Vascular Ehlers-Danlos Syndrome (EDS). In […]

Patient Perspectives: Nina Knight – Mother, Advocate and Chair of Acrodysostosis Support & Research

Nina Knight is a mother, advocate and Chair of the Acrodysostosis Support & Research Charity. Nina’s daughter, Lily, was diagnosed […]

Patient Perspectives: Daniel Lewi, Founder and CEO, CATS Foundation

Daniel Lewi is the Founder and CEO of the Cure and Action for Tay-Sachs (CATS) Foundation, which supports children and […]

First New Alzheimer’s Drug Approved in 20 Years

The U.S. Food and Drug Administration has approved the first new treatment for Alzheimer’s disease in almost 20 years, giving […]