When James and his wife Steph welcomed their son Casper in December 2021, they had no idea how quickly their […]
Scientific progress is often viewed as an unqualified good: faster sequencing, cheaper tests, and cutting-edge genomics tools seem to promise […]
FLG: Tell us about your background and what set you off on this journey. First and foremost, I’m mum to David, who’s now 28. He has a […]
Although Kay Parkinson is officially retired, she volunteers at the Rare Disease Nurse Network where she is the Founder and […]
Peter Coleman is an independent researcher and full-time carer with a background in sound, TV, film and special effects. Both […]
Daisy Ireland is a Content and Event Producer at Front Line Genomics. Ireland not only has a background in Molecular […]
Caroline Presho is a mother, motivational speaker and Director of the online platform, BRCA Umbrella. After testing positive for a […]
Sarah Winckless is a former British rower, Bronze Olympic Medallist and the first woman to umpire the men’s Boat Race. […]
David Edward Rose works for a rare disease magazine called Rare Revolution Magazine. He is also an ultra-rare disease patient […]
Vaila Morrison is an architect focused on sustainable and inclusive design as well as a mother to a child with […]
