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Patient Perspectives: Maddie Stoodley – Gaucher’s Association Ambassador and UK Board Member

Maddie Stoodley is a rare disease patient and Gaucher’s Association Ambassador and UK board member. Stoodley was diagnosed at 16 […]

ARDEnt Assemble: Rare diseases and the impact of the pandemic

The pandemic has changed all our lives. Whether that be the loss of loved ones, employment or social interactions – […]

Genetic counsellors: The Charles Xaviers of our universe

“A genetic counsellor is like air conditioning. When you do not have it, you do not realise you are missing […]

Breast Cancer Awareness Month: On Fridays we wear pink

October is Breast Cancer Awareness month and on Friday (23rd October) charities are encouraging individuals to wear pink to raise […]