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Opinion: We should address genetic data governance as we fight to find a COVID-19 vaccine

As the world rushes to develop a vaccine against COVID-19, geneticists are looking at our genes to understand the variation […]

A Spotlight On: Data Sharing – Mahsa Shabani

Mahsa Shabani is an Assistant Professor in Privacy Law at the Faculty of Law and Criminology, Ghent University in Belgium. […]

FAIR data applied to AI & machine learning

The FAIR principles should be applied to both human- and machine-driven activities. Humans have an understanding of the meaning of […]

Considerations for starting a FAIR data library

The FAIR principles have been defined to enable data producers and publishers to make their data findable, accessible, interoperable and […]

Indigenous Genomic Data Needed for Equitable Expanded Carrier Screening:

Pre-conception Expanded Carrier Screening is a technology that uses whole genome sequencing to screen prospective parents as potential carriers of […]

Data sharing at risk due to lack of public trust

The largest ever survey looking at global public perceptions of genomic data sharing suggests that more work is needed to […]

How much is your genetic data worth?

Recently, we have been posting about the changes in user perceptions on the way genetic data is owned, handled, and […]

A Guide to Digitizing Biopharma

Introduction Historically, the biopharma space has always lagged behind other industries when it comes to digitizing processes. But over the […]

Opinion: Direct-to-consumer epigenetic tests are not getting enough scrutiny

The direct to consumer (DTC) genetic test market has seen a decline recently over privacy concerns, but private companies such […]

A Guide to the FAIR Principles in Biopharma

Introduction There is a constant growth in the volume, complexity and creation speed of data. Therefore, humans are increasingly relying […]